Adventures of a Morgellons' sufferer. We do not really know what morgellons really is but share symptoms. The most common are crawling, biting and stinging sensations, finding black speck-like materials or fibers on bed and or beneath the skin, fatigue,joint pain and 93 other symptoms. The cause is unknown but the symptoms are real and according to new research there are 1.000 new cases a day in the world. And so it goes…
Saturday, January 30, 2010
better and then... watch your food..
Our immune system is all that makes us susceptible.
Now back to our dirty laundry.
Symptoms were much better after two weeks of non GMO, only organic fruits and veggies.
I did have an episode where i got a blouse out of the laundry basket and as I wore it, ouch! immediate Pinpricks! I took it off, showered, changed to another and was fine.
Now, about diet. Had a great week after 1 week eating only organic fruits and veggies, cutting all cheese, flour and sugar, the symptoms got MUCH BETTER, only some nose crawlies but not much. Bath was good too, not much stuff there. Upon applying the fungicide and Enduro soap, no debris.
There was only one night that I had plenty imsonia as I felt something in my ear. Could not sleep and and was late in the morning. I do worry a lot about my job.
Today... I ate two slices of a sweet apple pie and voila! Crawlies... ARGH! Up my nose, my arms, everywhere! Woken up in the middle of the night with it, felt then that something descended my nose passages and stayed in between my mouth and my throat. Nightmare...
Well let's go back on track!
By the way, i do zap from time to time and i do believe it makes better. I don't think Ms. Clark was a charlatan, I think she ws just not understood. Plus, she said acid reflux was a bacteria, even before it was "discovered"that it really was.
Saturday, January 23, 2010
GMO food x Organic - Plus band-aid and bandages allergy (!?) now....
Wednesday, January 20, 2010
Morgelllons Convention
Laundry & fabric
Monday, January 11, 2010
Dr. Hildegarde Staninger
Monday, January 4, 2010
What is it?
Chemtrails? Agrobacteria, Trangenic food... Collembola, Agrobacterium,Pseudomonas Putida Lyme Disease... a virus a fungus... so much speculation. All I know is that it crawls and stings and itches. Through my skin, through my eyes, nose nd ears. That I feel extreme fatigue, confusion, sores, "fibers", I cannot sleep and I cannot find a sensible information or even a cure.
I am in the begining of this, it started only 4 months ago, but besides confused, I have been afraid to get worse, to get my body full of sores.
There are so many theories it send me spinning.
There is a research at Oklahoma University, conducted by Dr. Randy Waymore, one of the first to look a little deeper. He says that at first he thought was some sort of internet story, but when he saw people complaining abput the same symptoms, he asked them to send samples, and the samples came from all over the country, and they were basically the same, which for him was a red flag that this is real.
Then there is Dr. Citovski, from SUNY- NY who was looking for a bacteria and found Agrobacterium in 18 of the 20 people said to have Morgellons.
Mr. Common Sense, who has a great Morgellons site and now says he is symptom free had a post about what these scientits found. And you can read it here
Morgellons Protocols
I joined groups and forums to find people with the same symptoms. Mostly all people agree that GMO is responsible for this, that is Genetic Modified Organisms. Being these a plethora of modified fungus, parasites, insects, modified food or environmental conditions.
Some blame on so called chemtrails (aerial sprays) and that these are the result of nanotechnology, speculation rises if it is all of these altogether.
There are studies pointing to modified bacteria as the Agrobacterium used to manipulate crops as cottons, corn and so on as 18 of 20 patients show "Agrobacterium Tumefensis" in them, others think is a fluke or worm combined with strongolydes, or the insect collembolla that somehow is now infesting human skin. Some patients also carry the Lyme Disease bacteria within themselves. There are even believers in an out of this world organism brought in by a meteorite. And there is the ones saying that many of the above are involved.
Fact is no one really knows what causes this "Unexplained Dermopathy" but that it exists, people describe the same symptoms and some call it Morgellons. There are those who believe they are being attacked by super mites and the bird mite forum has lots of them. Also what is common among the "morgies" is that before the onset of the disease ( crawling, stinging, bitting sensations, black specks, fiber pills and brain fog, they had already some sort of immune deficiency or trauma which many believe is what let them susceptible to the Moegellons vector.
Sufferers like myself are left to deal with this painful and disturbing disease on their own and start many alternative treatments since modern western medicine offers no relief in the research or treatment of this condition.
Sufferers call these treatments, protocols and there are many protocols out there.
Here are some examples:
There is Mel says after 1 year he is symptom free. He followed part Lyme disease protocol, part cleaning the terrain protocol, meaning getting the immune system stronger, detox and antibiotics.
- Colloidal silver, or Molecular Silver- as MMS or Molecula Silver
Then there is the Poor man's protocol ofMr. Common Sense,from Morgellons a Mundane Approach which is similar to Mel's but without the antibiotic and the silver. Very similar to Dr. Burgstiner protocol but Mr. Common Sense uses supplements he buys at Whole Food Market, specially NAC which he believes is the main cause of his symptoms's remission.
- Mr. Common Sense Protocol:
Coenzyme Q10, L-CARNITINE VEG CAPS 500 mg w/B-6, Spectrum Fish Oil,10% Sulfur Soap, Dr. Bonners Peppermint Soap
Then there is Dr. Hildegard Steninger a toxicologist, who says Morgellons is the product of nanotechnology. She has a clinic in Los Angeles and says, treatment is individual as it differs from individual to individual. She uses Far- Infra red, minerals ( salt) , supplements and soaps
Some people affirm they felt better with her treatment attributing it to Far Infrared.
And, some of the Lyme Disease protocol, which consists in high doses of salt and vitamin C. Some say Lyme Disease and Morgellons have some connection.
Saturday, January 2, 2010
How did I "get" Morgellons? Bird Mites anyone?
Two weeks later I moved to a new apartment. First week into the new apartment, I used the then now washed bed sheet. to find that something was bitting me, all over my body. The bed sheet went back to the washing pile again. Next day sitting in my desk, something bit my toes, I promptly got a bug spray and sprayed all around but the bitting never stopped. It got worse.
One morning I felt a big bite on my little toe. I pushed the sheet aside, and the toe was red but there was nothing on it or around it but a pink/ grey blob of fiber, as pink as the bed sheet. I looked around for a mosquito or a bug, and nothing - I was puzzled.
Stupid mites! - I thought
On the second call, he seemed annoyed and told me that there was nothing there.
There is something there that provokes this, it might be as well our food, the genetically modified we are now consuming or wearing as cotton is genetically modified as well. It might be the environment, yes, chemtrails do exist, they call it cloud seeding, and it is done for rain. This is not our imagination, might be a imperceptibility, and alergy to food and chemtrails are real! Look at this link http://www.vcreporter.com/cms/story/detail/the_sky_is_falling/9536/
This all was my body telling me it was not well.
No mites exist. I am still searching for answers without being called "crazy".
Friday, January 1, 2010
Morgellons Disease
At this time, scientists and doctors do not know what causes this condition. They do not know if people who report the condition have common risk factors or if there is a common cause for the symptoms. To assist in learning more about this condition, CDC is conducting an epidemiologic investigation. To learn more about the investigation, please refer to the following link:www.cdc.gov/unexplaineddermopathy/investigation.html
According to the Morgellons Research Foundation:
Morgellons disease is a poorly understood condition which a growing number of physicians believe to be a chronic infectious disease. The disease can be both disabling and disfiguring. The symptoms include itching, biting and crawling sensations, “filaments” or fibers which emerge from the skin, skin lesions which range from minor to disfiguring, joint pain, debilitating fatigue, changes in cognition, memory loss, mood disturbance and serious neurological manifestations. Although the Centers for Disease Control and Prevention (CDC) is currently investigating the disease, it is not yet fully recognized by the medical community. At this time, the cause of Morgellons disease is unknown and there is no known cure. Morgellons Disease is best explained in detail by our Case Definition.
So many people complaining of bird mites, mites, super mites, scabies or just not knowing what causes the stinging, crawling and itching sensations at night. The insomnia or the extreme fatigue. little sores that wont heal or "freckles" as strange age spots appearing at once.
I can tell you that the cause as they say is unexplained, the definition is vague but the symptoms are very real and according to new research there are 1.000 cases a day all over the world.
I wish It wasn't this way.